Time slips by; I did not realize I had not written since before the arrival of Sirius Black Monster, Emily's new bunny, who is very friendly and working out well. The kids are both out of school now for their between-term holidays; Joseph has been having practice exams the last two weeks, so has hardly been in school, really.
Manford had an MRI this week, and we met with the oncologist next day for the results, which were not encouraging. He has growth in three areas that I guess were suspicious before, and now seem to be tumors. One is where the first tumor was taken out, in the middle of the right frontal lobe; one is anterior (frontmost) frontal, and one is temporal (all right side). This helps to explain why he couldn't get off steroids, and has been having a bit more trouble lately. There is really no active treatment that has any reasonable chance of helping, so we are seeing the palliative care team next week. I will be trying to decrease work further (from two days a week to maybe just essential meeting, and what is essential?).
We did get the hot tub finished about two weeks ago, and it has been great for the kids and me; Joseph has been in it every night and actually talks to me sometimes...Manford has had difficulty getting in and out; we got a rail put in this week, but it was still a bit stressful getting out, so we'll have to see. The OT may have some suggestions.
It is spring, with many pretty flowering trees, but also rain, rain, rain...
We are going to try to spend a few days in Auckland over the next two weeks; we were thinking of going to Australia, but I don't think that is realistic--but Auckland is close and there are many things we haven't seen, and if the weather clears, maybe a dolphin and whale tour.
We appreciate your thoughts and prayers.
Saturday, September 25, 2010
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1 comment:
Carrie and family:
I have appreciated your honesty and the fact that you have not been color coating the reality. I'm so sorry for what you are having to go through, but you are doing it with such grace. I trust the palliative care will continue to put Manford's comfort first as you have been doing. Your love will carry you all through.
I'm thinking of you!
Love,
Suzy
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